Texas Scottish Rite Hospital for Children
It always amazes me how when you feel all alone in a struggle or trial in life Heavenly Father provides a way for you to make it through. Yesterday I went with Scott to his appointment with his Rheumatologist. I normally don't go, and Scott hadn't been to see him in a year. Scott made the appointment on his own and I decided that it would be a good idea for me to go and get a better understanding of Scott's condition and also ask if anything doing with Scott's health may have an impact on what is happening to Tristan.
Scott's appointment went very well...everything looked good. We then asked about Tristan and Dr. Cush immediately told us of two Pediatric Rheumatologists that were researching Periodic Fever Syndromes at Scottish Rite Hopsital. He suggested that we get in touch with them to see if Tristan could participate in the study and be evaluated. All services provided by Scottish Rite are gratis...so we would not have to worry about what insurance will or will not pay for. I was so happy to have more contacts to hopefully gain more insight into what is happening with Tristan-considering that almost all Pediatricians that we spoke to have never even heard of PFAPA.
So last night I am searching on the internet about Scottish Rite and trying to find information about these doctors that were recommended to us. I just so happened to come upon an article about one of the doctors which contained her email. I decided to send her an email explaining how Dr. Cush had recommended that we get in touch and explained Tristan's situation. I wasn't sure if I would hear back at all...but today she emailed me back! She said that they are doing research on Periodic Fever Syndromes including PFAPA and in fact are tracking most cases in the Dallas area. She said that as long as Dr. Wasserman (Immunolgist/Allergist) agreed that Tristan could be seen, she would love to have Tristan come in and be evaluated. So I send Dr. Wasserman an email on his secure...
